Skip to Content

Woman’s nonprofit helps cystic fibrosis patients with medical bills

<i></i><br/>
KTVZ

By Jessica Boyington

Click here for updates on this story

    PHILADELPHIA (WPVI) — Maddy Palmer is a 25-year-old software engineer from Exton, Pennsylvania.

She lives a full life doing what she loves: going to the Jersey Shore, working out and being with her friends and family.

But Palmer also has cystic fibrosis and was diagnosed along with her older sister at a young age.

“Cystic fibrosis is a genetic disease you’ve inherited from your parents. Both parents carry the gene. You have a 25% chance of getting it,” say says. “The most common one is the Delta 508, which my sister and I both have.”

CF is a life-threatening disorder that damages the lungs and digestive system, and it’s rare. Only 30,000 people in the United States have it, and it’s not an easy life.

“(It) attacks the whole body, and we have a lot of mucus in our lungs. So it makes it really hard to breathe. It’s like breathing through a coffee straw,” said Palmer.

Access to new drugs and treatments have allowed Palmer and her sister to live more comfortably with minimal trips to the hospital, and this inspired her to help others live better with the disease.

“When the pandemic hit, I knew people were struggling with mortgages and financial bills. And we throw in CF or any disease, and it’s really costly,” said Palmer.

In October 2020, she created a nonprofit called “Creating Sunshine Forever.” It assists people with cystic fibrosis by covering medical bills and other financial obligations like groceries. She collects donations through events, fundraisers and social media outlets.

“I thought I can do more and why wouldn’t I? You know, my whole life I struggled, I was there, so I know what they’re going through,” Palmer said.

So far, Creating Sunshine Forever has raised about $30,000, and the money has been distributed to 15 people with the illness.

“It’s something bigger than yourself. And, you know, to see everyone struggling, and then you’re in a position to help everyone, it’s just amazing,” said Palmer.

Please note: This content carries a strict local market embargo. If you share the same market as the contributor of this article, you may not use it on any platform.

Article Topic Follows: CNN - Regional

Jump to comments ↓

CNN Newsource

BE PART OF THE CONVERSATION

KTVZ NewsChannel 21 is committed to providing a forum for civil and constructive conversation.

Please keep your comments respectful and relevant. You can review our Community Guidelines by clicking here

If you would like to share a story idea, please submit it here.

Skip to content